Saturday, March 19, 2011

Coming up on almost two years ...

Martial words reflect illusory mind-set against illness

Finally, this morning, enough -- I read one too many journalistic references to someone's "beating" cancer, as if cancer was an opponent to be defeated, an enemy to be conquered, a battle in which courage often wins the day.

It is a lie. Cancer is to be endured, that's all. The best you can hope for is to fend it off, like a savage dog, but cancer isn't defeated, it only retreats, is held at bay, retires, bides its time, changes form, regroups. It may well be that the boy who survives an early cancer lives a long and lovely life, without ever enduring that species of illness again, but the snarl of it never leaves his heart, and you'll never hear that boy say he defeated the dark force in his bones.

Use real words. Real words matter. False words are lies. Lies sooner or later are crimes against the body or the soul. I know men, women and children who have cancer, had cancer, died from cancer, lived after their cancer retreated, and not one of them ever used military or sporting metaphors that I remember.

All of them spoke of endurance, survival, the mad insistence of hope, the irrepressibility of grace, the love and affection and laughter and holy hands of their families and friends and churches and clans and tribes. All of them were utterly lacking in any sort of cockiness or arrogance; all of them developed a worn, ashen look born of pain and patience; and all of them spoke not of winning but of waiting.

A great and awful lesson is contained there, it seems to me, something that speaks powerfully of human character and possibility. For all that we speak, as a culture and a people, of victory and defeat, of good and evil, of hero and coward, none of it is quite true. The truth is that the greatest victory is to endure with grace and humor, to stay in the game, to achieve humility.

I know a young man with brain cancer. He's 16 years old. He isn't battling his cancer. He is enduring it with the most energy and creativity and patience he can muster. He says the first year he had cancer was awful because of the fear and vomiting and surgery and radiation and chemotherapy and utter exhaustion. But he says that first year was also wonderful because he learned to savor every moment of his days. He met amazing people he would never have met, and his family and friends rallied behind him with ferocious, relentless humor. He learned he was a deeper and stronger and more inventive and more patient soul than he had ever imagined.

He also learned about fear, he says, because he was terrified, and remains so, but he learned that he can sometimes channel his fear and turn it into the energy he needs to raise money for cancer research. Since being diagnosed with cancer, he has helped raise nearly $100,000, which is remarkable.

I met a tiny, frail nun once, while walking along a harbor, and we got to talking. She said no one defeats cancer; cancer is a dance partner you don't want and don't like, but you have to dance, and either you die or the cancer fades back into the darkness at the other end of the ballroom. I never forgot what she said, and think she is right, and the words we use about cancers and wars matter more than we know.

Maybe if we celebrate grace under duress rather than the illusion of total victory we will be less surprised and more prepared when illness and evil lurch into our lives, as they always will; and maybe we will be a braver and better people if we know we cannot obliterate such things, but only wield oceans of humor and patience and creativity against them.

We have an untold supply of those extraordinary weapons, don't you think?

Tuesday, April 6, 2010

Easter Sunday was one year since Jeff passed away. It seems like it has been an eternity - not just 365 days.

I started the day by going to Mass at 8AM - picking up my mother for a day out. We headed towards Tampa and stopped at my younger brother's cemetery plot. He was killed on his motorcycle in '88 at the age of 27 (not his fault). Then we went for lunch on the Gulf - live music, good food and spent the afternoon watching the alligators swimming around the marsh. Thank goodness we were elevated on a deck.

I must confess that I kept my eyes on the clock - being Jeff passed away at 3:05PM. When the clock hands showed it was 3:05 ... I looked around the restaurant and nothing had changed. All the people were still talking, laughing, eating and the music was still blaring. I know Jeff was happy we were out and about and not just sitting at home. He wants me to go on with my life as I would with him if the tables were turned.

Only God knows what the future holds but I know I am a survivor.

Sunday, December 13, 2009

Christmas 2009

I wanted to share this video with all my friends and family that gave us so much support as we fought Jeff's cancer this past year. Merry Christmas and a very healthy and happy New Year.

Sunday, April 12, 2009

This last entry is the hardest ever

On Thursday April 2 Jeff was rushed to Oak Hill Hospital with what ended up as an abdominal aneurysm that had burst. Normally people don't even make it to be hospital and die shortly after it happens.

Around 3AM on Friday the vascular surgeon reviewed the CT scan and gave him a 30% chance of survival if they did perform the surgery - and not only would he have to be intibated (breathing machine) but he would have to be put on dialysis because of kidney failure. This was because the aneurysm was located right below the kidneys and they would have to shut off the blood supply to correct the aneurysm. The big word was IF he survived. The surgeon said he would also be in terrible pain as well. He also said that if he did survive the surgery (followed by added dialysis) he would still have to deal with the brain tumor.
He said this was 'MAJOR MAJOR' surgery but the outcome did not look promising.

The other alternative was to make him "pain free" and comfortable and he recommended that. He said he has less than 24 hours. It was the hardest decision I ever had to make but elected to let him die peacefully without any pain.

Right after the decision was made - they gave him some great pain Rx and I asked him how he was feeling. He said he had no pain but he also had no feeling in his legs from his toes to the pelvic area. The doctors said that was very normal and to expect more of those symptoms.

Around 6AM I asked the nurse to call in the local Catholic Priest. He arrived around 6:30AM and started the "last rites". When Jeff saw him he just looked from me to him and back again and then made the sign of the cross. I truly think he knew it was the end.

After the Priest left I told him that when he gets up in Heaven to please pray for us poor souls left here on earth and his response was "not now" and smiled. I then apologized for losing my temper and getting angry over the past year and it wasn't directed at him but at the situation we found ourselves in. His response to that was to take his finger and thump my nose. So he hadn't lost his sense of humor even to the end.

I came home to shower, etc. and was right back up there mid morning. Around 5PM I left for home - my eyes were burning from no sleep. Don't know why I did that because I never did get any sleep. Called the hospital around 10PM and the informed me they had moved him to the second floor - had a couch set up with pillows, blankets and sheets and I could stay the night. I rushed back around 11PM to spend the night.

He had a male nurse (Eric) who entered the room and asked if we were people of faith and I told him yes. He then asked if he could pray with us. I've never seen this happen before but Eric knelt down at the foot of the bed and prayed. I do know he came back into the room to put another blanket on me and I finally slept until 6AM.

The vascular surgeon appeared Saturday morning and said he was surprised to see we were still there and reiterated that he would not be seeing us on Sunday. He was right -Jeff took his last breath at 2:40PM and his heart did not stop beating until 3:05PM.

I thank God I was able to be with him when he took his last breath - and he was at peace.

This past year has been the hardest journey I have ever been on and I'm sure Jeff felt the same way. A few weeks ago he said "Cheryl, this is so tragic that it's hard not to cry". I know he felt like crying at times - but he never did (at least not in front of me).

Thank you all for your prayers, encouraging words, e-mails, Masses, cards, flowers, food, ,etc. It means more than I can ever say.

His journey has just started and as Fr. Bernie said - what a glorious time for Jeff to be in Heaven.

Monday, March 30, 2009

I don't think this is a good sign

When Jeff first showed symptoms of the tumor his left eye would not move past center - to the outside. After the tumor disappeared in November his eye had full lateral movement. Today I noticed when he was looking at me his good eye (right) was focused dead straight at me - but his left eye was way to the right side (by his tear duct). I'm certainly concerned about that because this is what happened last year - but now it seems to be worse.

I am thankful he has an appointment with the eye surgeon on Thursday afternoon. She wanted him to come in to check the eye that had the cataract.

Please pray that this is not what I think it is (return of the tumor). He has been complaining about eye pain - and I had attributed it to nerve regeneration. I think my theory has been blown out of the water.

Productive Monday

We had quite a rain storm on Saturday evening accompanied by lightening and thunder. We must have had a ton of pollen in the air because on Sunday the deck was all stained yellow. Even hosing it off didn't remove the stain. Today, while Jeff was resting, I pressure washed the deck after applying pool chlorine. Thank goodness all the stain was removed. I also used the opportunity to wash off all the lawn furniture. Chore completed.

Jeff had a restful weekend - but still was plagued with pain. Fortunately he has no chemo this week so he can regain some strength before starting again the following week. I did ask him today how he was and his only comment was he felt "down". That is so sad - I wish I could encourage him to feel positive. When you are DOWN to nothing... God is UP to something! Faith sees the invisible, believes the incredible and receives the impossible!

Have a great Monday.

Saturday, March 28, 2009

A calm Friday and Saturday

Last night Jeff decided that he would try sleeping in our king size bed instead of his usual couch. He discovered it was much more comfortable and he got a pretty good night's sleep considering he must have gotten up in the middle night and moved to another bedroom. At least he was in a bed and not on that couch.

Good news yesterday - he actually ate 3 teaspoons of cream of wheat and also a fork full of my dinner salad. I'm sure you are saying to yourself "what a combination". At least he was willing to eat something. Now I call that progress.

His pain level must really be down because he's not asking for pain Rx. His balance and speech is so much better when he's not taking the hydrocodine. I'm thankful for that.

So all in all - the past two days have been a welcomed change and I'll take that whenever God wishes to give it to me.

Have a great weekend.

Thursday, March 26, 2009

I guess my hearing is not too good .... let me explain

I took Jeff for his sixth chemo this afternoon and had three questions for his "Harley riding" Oncologist. I knew we weren't scheduled to see him - so I just hand a note to the nurse who administers the I.V. (Not that I don't slip into his office on the way out for some light conversation). He's such a neat guy and great bedside manner with his patients.

Now to the hearing problem I must have ..... this was NOT his last chemo. When Dr. H had originally told me 6 treatments it was really 6 (3 session) treatments = 18. Every fourth Thursday he has that off. So in reality Jeff has only had 6 treatments - next week off - and then another 3 treatments - the following week off, on and on until he has completed a total of 18. Then a PET scan will be scheduled. Duh! So we have a way to go before the dreaded PET.

Also he has a urinary tract infection - so will pick up a Rx for that. Thank goodness for Medicare and his supplement Rx insurance.

That's the update ...... I just hope I can keep all of this straight because not only my hearing must be getting bad but I've heard the memory loss follows....

Have a great evening!