Christmas 2009

I wanted to share this video with all my friends and family that gave us so much support as we fought Jeff's cancer this past year. Merry Christmas and a very healthy and happy New Year.

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This last entry is the hardest ever

On Thursday April 2 Jeff was rushed to Oak Hill Hospital with what ended up as an abdominal aneurysm that had burst. Normally people don't even make it to be hospital and die shortly after it happens.

Around 3AM on Friday the vascular surgeon reviewed the CT scan and gave him a 30% chance of survival if they did perform the surgery - and not only would he have to be intibated (breathing machine) but he would have to be put on dialysis because of kidney failure. This was because the aneurysm was located right below the kidneys and they would have to shut off the blood supply to correct the aneurysm. The big word was IF he survived. The surgeon said he would also be in terrible pain as well. He also said that if he did survive the surgery (followed by added dialysis) he would still have to deal with the brain tumor.
He said this was 'MAJOR MAJOR' surgery but the outcome did not look promising.

The other alternative was to make him "pain free" and comfortable and he recommended that. He said he has less than 24 hours. It was the hardest decision I ever had to make but elected to let him die peacefully without any pain.

Right after the decision was made - they gave him some great pain Rx and I asked him how he was feeling. He said he had no pain but he also had no feeling in his legs from his toes to the pelvic area. The doctors said that was very normal and to expect more of those symptoms.

Around 6AM I asked the nurse to call in the local Catholic Priest. He arrived around 6:30AM and started the "last rites". When Jeff saw him he just looked from me to him and back again and then made the sign of the cross. I truly think he knew it was the end.

After the Priest left I told him that when he gets up in Heaven to please pray for us poor souls left here on earth and his response was "not now" and smiled. I then apologized for losing my temper and getting angry over the past year and it wasn't directed at him but at the situation we found ourselves in. His response to that was to take his finger and thump my nose. So he hadn't lost his sense of humor even to the end.

I came home to shower, etc. and was right back up there mid morning. Around 5PM I left for home - my eyes were burning from no sleep. Don't know why I did that because I never did get any sleep. Called the hospital around 10PM and the informed me they had moved him to the second floor - had a couch set up with pillows, blankets and sheets and I could stay the night. I rushed back around 11PM to spend the night.

He had a male nurse (Eric) who entered the room and asked if we were people of faith and I told him yes. He then asked if he could pray with us. I've never seen this happen before but Eric knelt down at the foot of the bed and prayed. I do know he came back into the room to put another blanket on me and I finally slept until 6AM.

The vascular surgeon appeared Saturday morning and said he was surprised to see we were still there and reiterated that he would not be seeing us on Sunday. He was right -Jeff took his last breath at 2:40PM and his heart did not stop beating until 3:05PM.

I thank God I was able to be with him when he took his last breath - and he was at peace.

This past year has been the hardest journey I have ever been on and I'm sure Jeff felt the same way. A few weeks ago he said "Cheryl, this is so tragic that it's hard not to cry". I know he felt like crying at times - but he never did (at least not in front of me).

Thank you all for your prayers, encouraging words, e-mails, Masses, cards, flowers, food, ,etc. It means more than I can ever say.

His journey has just started and as Fr. Bernie said - what a glorious time for Jeff to be in Heaven.

I don't think this is a good sign

When Jeff first showed symptoms of the tumor his left eye would not move past center - to the outside. After the tumor disappeared in November his eye had full lateral movement. Today I noticed when he was looking at me his good eye (right) was focused dead straight at me - but his left eye was way to the right side (by his tear duct). I'm certainly concerned about that because this is what happened last year - but now it seems to be worse.

I am thankful he has an appointment with the eye surgeon on Thursday afternoon. She wanted him to come in to check the eye that had the cataract.

Please pray that this is not what I think it is (return of the tumor). He has been complaining about eye pain - and I had attributed it to nerve regeneration. I think my theory has been blown out of the water.

Productive Monday

We had quite a rain storm on Saturday evening accompanied by lightening and thunder. We must have had a ton of pollen in the air because on Sunday the deck was all stained yellow. Even hosing it off didn't remove the stain. Today, while Jeff was resting, I pressure washed the deck after applying pool chlorine. Thank goodness all the stain was removed. I also used the opportunity to wash off all the lawn furniture. Chore completed.

Jeff had a restful weekend - but still was plagued with pain. Fortunately he has no chemo this week so he can regain some strength before starting again the following week. I did ask him today how he was and his only comment was he felt "down". That is so sad - I wish I could encourage him to feel positive. When you are DOWN to nothing... God is UP to something! Faith sees the invisible, believes the incredible and receives the impossible!

Have a great Monday.

A calm Friday and Saturday

Last night Jeff decided that he would try sleeping in our king size bed instead of his usual couch. He discovered it was much more comfortable and he got a pretty good night's sleep considering he must have gotten up in the middle night and moved to another bedroom. At least he was in a bed and not on that couch.

Good news yesterday - he actually ate 3 teaspoons of cream of wheat and also a fork full of my dinner salad. I'm sure you are saying to yourself "what a combination". At least he was willing to eat something. Now I call that progress.

His pain level must really be down because he's not asking for pain Rx. His balance and speech is so much better when he's not taking the hydrocodine. I'm thankful for that.

So all in all - the past two days have been a welcomed change and I'll take that whenever God wishes to give it to me.

Have a great weekend.

I guess my hearing is not too good .... let me explain

I took Jeff for his sixth chemo this afternoon and had three questions for his "Harley riding" Oncologist. I knew we weren't scheduled to see him - so I just hand a note to the nurse who administers the I.V. (Not that I don't slip into his office on the way out for some light conversation). He's such a neat guy and great bedside manner with his patients.

Now to the hearing problem I must have ..... this was NOT his last chemo. When Dr. H had originally told me 6 treatments it was really 6 (3 session) treatments = 18. Every fourth Thursday he has that off. So in reality Jeff has only had 6 treatments - next week off - and then another 3 treatments - the following week off, on and on until he has completed a total of 18. Then a PET scan will be scheduled. Duh! So we have a way to go before the dreaded PET.

Also he has a urinary tract infection - so will pick up a Rx for that. Thank goodness for Medicare and his supplement Rx insurance.

That's the update ...... I just hope I can keep all of this straight because not only my hearing must be getting bad but I've heard the memory loss follows....

Have a great evening!

Wacky Wednesday

I THINK I accomplished quite a bit today. Not only did the speech therapist arrive to work on Jeff's facial muscles but my screen men showed up. I had to have three screen panels replaced as well as hardware on the man-door. The screening and spline only last about 10 years and you can see where the spline is shrinking. They gave me a good tip - if a hurricane is headed our way I should slash all the screens - which would save the cage. Replacing a cage would cost around $9K versus replacing all the screens at $900. I never thought of that.

After that was all completed I had to take Jeff's van in for an oil change along with having the new tire put on. Thank goodness there were no customers so it only took about 45 minutes to accomplish those two chores.

Tomorrow is Jeff's last chemo in this series - then we will schedule the PET scan. He's plugging along - but last night he was very confused. That always worries me when I'm trying to fall asleep. To be on the safe side I've taken the car keys out of the ignitions. That would be my luck - if he got in the car thinking he could drive and then end up in an accident. I don't need that on my plate as well.

My mother should be moving to the new assisted living facility shortly. There was a big open house reception last night - but with the van just having the temporary tire I couldn't risk driving up to get her and then drive her back. The mechanic said I should not drive far with that tire. I know she was disappointed - but it was not in the cards. Hopefully they will have more open house receptions (complete with a band) after she moves in so she can see what she missed out on.

Have a great Wednesday evening....

When it rains it pours - addition to post earlier today

All went well with the early appointment my mother had with the new nurse. On the way back I took her over to the senior community center to visit with all her old friends prior to dropping her off at Cedar Creek. After dropping her back - I turned around in the parking lot and apparently hit the cement curb - tearing the back tire of the van. Thank goodness there is a foreign auto repair right on the corner - so walked over there and they had me drive the car over. They changed the tire and on the way home I stopped by the place where I get the oil changed and the tires rotated. Al - the owner is ordering me a new tire and it should be in by Wed. It is time for an oil change so will use that opportunity to do both at the same time. I just wasn't planning on paying an additional $165 on Wednesday.

Oh well - it was my stupid mistake - not judging the distance to the curb. Better believe I will back out of that parking lot in the future.

Survived another Sunday night

Thank goodness it's Monday. Last night was no picnic! I truly believe Jeff has his days and nights mixed up. As I had posted in the past - for three days after chemo his sense of time, etc. is on target and this I believe is from the steroid that is mixed with his chemo drug that he gets on Thursday. When that wears off we are back to confusion and roaming all night.

He slept most of the day on Sunday only to be up pretty much all evening. I woke up around 4AM to see all the lights and TV on with him walking around without his walker. I think I found the walker outside on the lanai. Not using the walker poises a real danger because we have all tile floors and one fall could result in broken bones. I got him situated so I could go back to sleep only to hear him up again five minutes later. Around 5AM I decided that I might as well get up and start my day. If only I could find a way to keep him awake during the day so he'd sleep at night. That's next to impossible unless I put him in the car and drive him around during daylight.

The nurse at my mother's new assisted living facility called last week and wants to meet with her this morning to go over her medical needs prior to her move there. The move is getting closer and as soon as they receive their state occupational license they will be allowing everyone to move in. Hopeful this will take place the first of April. That will also depend on the availability of the movers.

Jeff's cataract surgery has been successful as far as I can tell. It's really strange not seeing him wear glasses. The only downside to the surgery is all the eye drops that are required for two weeks after. At least we have five days under our belt so we can see an end to this chore in the not too distant future.

This week should be an easy one - with only three days of facial stimulation by the speech therapist and chemo on Thursday. This is last one (of this series) and then we will schedule the PET scan to see where we are. Hopefully, with all your prayers, it will show that the new chemo drug is doing its job. Unfortunately I think that the radiation he received last summer did a number on his memory and response time. I hope I am wrong on that front and the chemo he is receiving is causing this because then it would be temporary. That's a question I will ask the Oncologist on Thursday.

TGIF

What a whirlwind this week. Yesterday we had an appointment with the eye surgeon. Great news on his cataract removal - they had him read the eye chart and he could read all the lines except the very last line (the smallest print). She said his vision is now 20/30, which is great for the day after surgery. Most likely within the next two weeks it should get to 20/20. He will need glasses for reading. It's so strange not to see him with his glasses on.

She also said she is going to wait until his right eye is completely healed before taking off the other cataract.

After that appointment he went for his chemo. He has one more treatment next week and then the PET scan.

Now I can look forward to 5 days with nothing on the calendar except a much needed haircut. Time to treat myself.

Have a great weekend everyone.

He can see clearly now .......(song)

Today was very quick paced. We thought we had time to spare and then got a call from the outpatient surgery center. They had some cancellations and Dr. Linda Lepik was available to come in earlier. We were originally scheduled to be there at 11:45 but they changed arrival time to 10:15. We got a call at 8:45 and had to leave the house by 9:20 to drive the distance and arrive on time. Thank goodness I was pretty much ready - but getting Jeff's butt in high gear was hilarious.

The cataract removal only takes about 15 minutes - but you all know the before prep and the after procedure of apple juice/cookie consumption takes time. Needless to say he just had two sips of the apple juice.

While in the waiting room prior to the appointment I saw a woman walk out with a clear plastic guard over her eye and the rest of the people were walking about with a black guard over their eye. Hmmm - it would seem the clear plastic would be better as it has to be taped over his eye at night and just using his bad eye would be an invitation for disaster. I mentioned this to the nurse after I got back from Walmart - while Dr. L was still back with him. She went back and got the clear plastic and sure enough - he was wheeled out with it taped on his face.

He told me this afternoon that he can see better out of that right eye and to me it looks clearer. A follow-up appointment is scheduled tomorrow - 9:25 and then on to chemo at 2PM. If any of you want to reach me - I'll spend the 1.5 hours with my mother having "tea at 3". I think I'll even have a brownie ....

Have a great evening.

Monday's reality

This morning reality set in AGAIN. After undergoing 16 chemo treatments - Jeff's hair is slowly starting to fall out. I know he hasn't noticed, which is a good thing. He was so happy that up to now he beat the odds of hair loss. In fact after his radiation treatments his hair came in real curly and was turning dark - the grey was disappearing. Now this! The good news is I have a nice straw hat he bought about ten years ago and never wore. It will come in handy now!

Got a call this morning from the visiting nurse. She's scheduled to stop in around 3PM to re-certify him with Medicare so he can continue to receive the facial stimulation therapy three times a week. Then off to see the eye surgeon at 6PM. She wanted to see him after all her patients left - so he wouldn't have to wait.

Decided to give him a morphine yesterday afternoon. I thought it would be safe because he had been off of them since he was admitted to the hospital about a month ago. Wrong idea .... he just can't handle those. He was back to being very confused, had difficulty walking and in general not doing well at all. He's now back on the Hydrocodone and he tolerates that pretty well.

After Jeff's eye appointment I think I'll treat myself and stop by McDonalds for a hamburger. I'm selfish and don't feel like making dinner in the middle of the night. It always takes about 1-2 hours when he has an eye appointment and it takes another 45 minutes to drive home.

Have a great Monday everyone!

Wonderful Surprise - Sunday

I woke up to a wonderful e-mail this morning. It said I should look by my front door.... Needless to say I immediately found a gift from a dear friend of ours. A beautiful card and a book entitled "The Last Lecture" by Randy Pausch. I can't wait to start reading it. He was a Professor of Computer Science, Human Computer Interaction, and Design at Carnegie Mellon University.

Professors are asked to consider their demise and to ruminate on what matters most to them. What wisdom would they impart to the world if we knew it was our last chance? If we had to vanish tomorrow, what would we want as our legacy?

He had been diagnosed with terminal cancer prior to giving his last lecture and his lecture was about the importance of overcoming obstacles, of enabling the dreams of others, of seizing every moment (because "time is all you have .... and you may find one day that you have less than you think." He said "We cannot change the cards we are dealt, just how we play the hand." Isn't that the truth.

Have a great Sunday!

What a day yesterday

Let me back up .... on Wednesday we saw Dr. Linda (the gal that is going to do the cataract procedure). She had an ultrasound done on Jeff's good eye ..... dilated his eyes, yada yada yada. On the way home he started feeling pain in that eye. It was pretty severe and I didn't know if I should take him to the hospital. Instead I called Dr. Linda's cell phone and of course no answer.

Thursday morning I got him up early - showered, shaved, etc. Drove the 30 miles south to see Dr. Linda (without an appointment). Luckily I saw her in the hall and had a chance to talk to her. For some odd reason her phone did not register that I had called. The waiting room was packed and I was concerned we'd have to wait. This was not an option because he had chemo scheduled at 2PM - about 48 miles north. She took him in immediately (no waiting). I truly believe there is a God ...

Long story short = his eye had dried out from the ultrasound. She numbed it - checked it out and thankfully there was no infection. She gave me an antibiotic and drops to be on the safe side. Got him home to rest before chemo.

Off to chemo and left papers for his Oncologist to stamp his approval for the procedure (which he did sign). He also gave me a Rx for the Thrush infection in his throat as well as a pain Rx.
Dashed off the health food store for mother --- took up her purchase to the assisted living facility, fixed her computer and had time for a cup of tea and then back to pick up Jeff. Dropped off the Rx on the way home - fed him and then back to pick up the prescriptions and do a little grocery shopping. By the time I got home it was 5:30PM - only to find out that the pain Rx the doc had given me was the same pain Rx that landed him in the hospital a few weeks ago (Morphine). If any of you need any morphine - just let me know. I'm sure as not going to give him that stuff again.

This morning we are back at Dr. Linda's so she can just check his eye. The cataract procedure is scheduled for Wed. afternoon. For two weeks after the removal he needs 4 different eye drops in his eye every 2 hours. I guess he will be joined at my hip. Also he has to wear a patch on that eye at night - so if he gets up in the night he will be navigating with his bad eye. This should be a real challenge and I'm anxious to see how that goes. I guess I will be sleeping on the other couch adjacent to where he sleeps so I can help him. So if I'm venting the next two weeks you'll know it's from a lack of sleep.

All in all I think it will be just fine and in the end hopefully he will see a big improvement.

And the beat goes on ......

Have a great weekend everyone!

Stages of grief

Before getting up this morning (4:15AM) - yup you read that right - a thought crossed my mind about grief. The professionals are always talking about the different stages of grief a cancer victim experiences - but in reality doesn't the caregiver/family go through these as well? I have listed them below and in reviewing them I can say I have gone through some of these myself. I find myself at this time in the "acceptance" stage. Like it says - it doesn't mean I won't be flip flopping back and forth.

What are the different stages of grief?

The person with cancer, spouses, parents, siblings and other family members will all experience grief. In general, grief has been described to occur in five stages. However, it is important to remember that people experiencing grief may move in and out of these stages in their own time and in their own way.

• Denial
  Denial is a stage where people try to believe that the cancer diagnosis is not happening to them or their family. One may feel numb or in a state of shock. Denial is a protective emotion when a life event is too overwhelming to deal with all at once.
• Anger
  Anger is a stage in which you understand the cancer diagnosis but are very upset and angry that it has happened to you, a friend or family member. One of the best ways of dealing with bursts of anger is to exercise or participate in another type of physical activity. Talking with family and friends, other people who have cancer and the hospital staff also may be helpful. The person with cancer also may be able to express his or her anger either verbally explaining how he or she feels by writing in a journal.
• Bargaining
  Questioning God, asking “Why me?” and “What did I do to deserve this?” are common questions in this stage. It is normal for the person with cancer to make bargains with themselves or God in hopes that bargaining will make the cancer diagnosis go away. Guilt is a primary emotion during this stage. Searching for something that you personally did, which could have contributed to the cancer, is all part of bargaining. People tell themselves or God that they promise not to do something they previously did (such as arguing with family members), or to start doing something they have not done (such as going to church regularly) in exchange for their recovery.
• Depression and sadness
  This stage of grief is one in which the diagnosis of cancer can no longer be denied and those involved may feel a profound sense of sadness. These feelings are normal. This stage can be accompanied by physical changes such as trouble sleeping or excessive sleeping, changes in appetite, difficulty with concentrating on simple daily activities or feeling a constant fear that someone else in the family will be diagnosed with cancer. It is important to talk about depression with a health care professional such as a social worker, counselor or meet with a support group to help you cope with your feelings.
• Acceptance
  Acceptance is a stage in which you have accepted the cancer diagnosis and are at a point where cancer has been incorporated as part of your life. You have made an adjustment to your illness. Acceptance does not mean that you will never feel other emotions, but usually families find that they are better able to manage their lives overall upon reaching this stage. Going through the grieving process is the best way to cope with a cancer diagnosis. By giving yourself and your family permission to grieve, you will be able to cope.

Am I being selfish

On Friday I came up with the idea that I might be acting selfish wanting Jeff to go through with his cataract removal on top of everything else he's having to go through. After talking it over with his speech therapist she confirmed that this was a "good thing" as long as his Oncologist clears him for the procedure. She went on to say that anything that can give him "quality of life" is a plus. When a person notices an improvement in any health issues it releases endorphins in the brain - giving them a "high" feeling. She also said that is why she is continuing the facial stimulation. It's important to continue any treatments that make him feel like he's moving forward and not backwards. So with the Oncologist's approval (which I hope to obtain on Thursday) the cataract removal will take place on 3/18.

This morning he said he felt much better and I attribute that to not having chemo this week. Next week he will start back on chemo for the next three weeks (once a week) and then another PET scan. One good plus is that he has not lost any hair - and in fact it is growing so fast after just two weeks he needed another haircut. The only side effect I detect so far is a few little split fingernails which are filed down as soon as I see them.

Today will be spent pick up my mother to take her shopping at Walmart. Not the store I wanted to go to but I can always pick up what I need when I go out alone. She has been such a trooper - in that I can't get up to see her as much as I would like. She doesn't complain at all - one less thing for me to feel guilty about.

Have a great Sunday.

Medical Family Therapist

As I had mentioned in a previous post, Boissoneault Oncology Institute has a Medical Family Therapist on staff to meet with patients. Today we had a visit with Patrick Meadors, PhD.... Early today I had asked Jeff if he wanted to write down some topics he'd like to cover and he said he had plenty and he'd remember. Ooookkkkk!

Not knowing what to expect the therapist asked if I wanted to come in - but I thought Jeff might feel more open to discuss whatever without me there. About 30 minutes later Patrick came out to get me and said Jeff was having difficulities hearing him.

It was interesting - we discussed ongoing pain causing depression, trying to eat via mouth, and for Jeff to stop mourning what he use to be and focus on where he is now. We'd all like to be what we were .... but find something redeeming at this particular moment. When Jeff left to visit the men's room, Patrick and I discussed anticipatory grief. While it may help the family, the very ill or dying person may experience too much grief, causing the patient to become withdrawn.

The sum and substance is he is going to talk to the radiation doctor about getting some pain management as well as a Rx for the thrush he still experiences in his throat. He also said we could set up another appointment - but the next two weeks we are concentrating on his cataract.

I think Jeff had trouble hearing him because he spoke in a higher pitch. Poor guy - on the way home he said he had hoped to get more out of the session. We also found out they have a Head/Neck cancer support group that meets the third Wednesday of every month. I'll suggest that in the future.

Lisa, the speech therapist, had to cancel again today. Her little son is still very sick. Hopefully she will be here tomorrow.

Have a great evening.....

Long day .... but a lot accomplished

Started my day by calling Jeff's primary doctor's office to see if the PET scan CD's arrived from the diagnostic center in New Port Richey. Second time they were sent out and of course I got the same response - "No Mrs. Salow nothing arrived". Our attorney has been asking for them since Feb. 2 ..... and thinking I could save myself and Jeff the long trip south I thought it would be easier for them to mail the CD's to our doctor's office.

So I called NPRichey diagnostic office and told them we'd drive down this afternoon to pick them up. That way I could get them in the mail to our attorney so he can send those to New York.

This morning we got an early start - went up to my mother's place to deliver her Rx that arrived via mail and also stopped to buy some plastic cups that go over the legs of her walker. Without them the walker is difficult to move smoothly.

Oh yes - between all the trips I was able to spray the bushes that are dying in our yard. The little sprayer I borrowed worked great. Another chore accomplished.

On the way to the post office to mail the PET scan CD's - got a call from Sunflower ALF so instead of trying to call them back I stopped in to see what they called for. She wanted a shower chair ordered for her new room - only to discover she had one that Medicare paid for back in 2001. Medicare only pays for medical equipment once. I also found out that it probably won't be until the middle of the month when she will be able to move. They are waiting for the State authorities to walk through and give their stamp of approval.

Have a great evening - I definitely will.

It's going to be a long day

The dreaded Sunday night has come and gone. I can set my watch to it ..... the third day after Jeff's chemo and he's back to wandering at night. Sure wish I could talk the Oncologist into giving Jeff a Rx for daily steroids. Normalcy returns to our lives right after his chemo treatments when they include the steroid with his Taxotere chemo solution. Unfortunately a daily steroid would be harmful. He has this week off for chemo and next week he will start one a week for the following three weeks followed by the dreaded PET scan.

Today I will get the ball rolling for his cataract procedure. This will require one ultrasound test and an appointment with the eye surgeon. (Update - test will be a week from Wednesday 3/11 and on 3/18 - they will remove the cataract). He also has his weekly facial stimulation sessions on Wed/Thur/Fri.

Update on the bill from Citrus Memorial Hospital (Radiology Dept.) .... for $5.57. Well the bill was "sent out in error - please disregard it". Hmmm!

You'll get a kick out of this .... a few of our Silver Thorn bushes look like they are dying. Being new to the outdoor vegetation and all that entails I poured some chemical into the sprayer - added the required water and pumped up the sprayer. I was all set to start spraying the pesky insects that are killing the plants only to discover the sprayer does NOT work. What the heck! So today I will canvas the neighborhood to see if I can borrow some one's sprayer. (Update - a dear friend's husband has a sprayer - so that problem is solved). Nothing is easy. Like I said before chaos isn't a theory it's my life.

Have a good Monday everyone.

Good news and irritating news

Well the good news is that I got a call last night from Jeff's eye doctor and they have decided that it would be good for Jeff to have his cataract removed from his good eye. The surgery only takes 15 minutes - but will have to be in the outpatient surgery center for one hour. They have to do an ultrasound test and he will need to see the doctor for an in depth look/see prior to the procedure. He also needs to get clearance from his regular doctor prior to the operation. We are going to get that clearance from his Oncologist. He also has to be off his heart pill for one week prior which should be fine with him.

Having this cataract removed will hopefully help with his balance problems. Unfortunately at this time, they are leaving the left eye alone - because they need for the scar tissue on the cornea to heal. It's coming along - but has a way to go.

With the excess skin on the upper and lower lids - we will wait to have that done in the future. As I had mentioned - if they did that procedure now - they would still have to sew part of that closed to protect the cornea. Having that cataract removed will give him 20/20 vision in his right eye. He's all for it - so we will schedule the appointments next week when the office is open.

Now for the "upsetting news" ..... got in the mail a bill for $5.57 from of all places Citrus Memorial Hospital radiology department. What the heck!!!! Those are the same people that miss diagnosed him in the first place. Over my dead body am I paying that bill. So on Monday I will have a field day when I contact them regarding this. I know it's not a lot of money - but it's the principle of the thing. They can sing Dixie over this bill. Just thought of something funny - if they pursue this I will tell them I will pay pennies on the dollar.

Have a great weekend.

Another Friday

Yesterday was Jeff's third Taxotere Chemo treatment. His blood levels were good - so they were able to proceed. Some patients blood count is all over the place - and if it gets too low they have to delay treatment. Next week he has a reprieve - no chemo. He handled the treatment well and as predicted the steroid they put in the I.V. is working its wonders. He slept well last night and was up and adam this morning - all prepared for the speech therapist visit at 10AM.

He told me yesterday that he hasn't stopped "fighting" and that was good to hear. He did tell me that he gets so "down" at times. I suggested he see the Psychiatrist at the Radiation Oncologists office and he has agreed. That is set for next Thursday. It's great that this facility offers this for their patients because most cancer patients go through a plethora of emotions. Needless to say I will have his hearing aids turned on to maximum.

Today is his third day of eating one container of Yogurt to hopefully clear up the Thrush infection he has in his throat. Hopefully we will see some headway in a week or two.

Have a great weekend.

Wednesday's update

After the speech therapist visit this morning we headed to the eye doctor's appointment. Everything is "stable" and the scar tissue on his left cornea is healing - which was great news. I did ask about the possibility of having all the excess upper lid skin removed from both eyes and the lower left lid skin tacked up to take care of the atrophy. He said that could all be accomplished and it would probably take about 1.5 hours. Unfortunately the left eyelid would have to be sutured closed - at least 1/3 of the way because he just doesn't want that cornea to be exposed. His left eyelid still does not close completely and if he didn't suture it partially - it would be subjected to drying out. Jeff wants to think about it for a few days before committing.

Another mild stone today - Jeff had his first yogurt (vanilla). The speech therapist suggested he have at least one cup a day to see if the live culture will help in killing off the case of Thrush he has in his mouth and throat. It's so difficult to get rid of this type of yeast infection. A lot of people who have the inability to cough, swallow and mouth paralysis can get this.

Tomorrow is more speech and then chemo in the afternoon. I am definitely cornering the Oncologist to ask him about different pain Rx. What he got last week is just not doing the job. It's so hard to see him in pain. Short of being hooked up to an I.V. and being totally unconscious - there has to be a happy medium.

Good news though - I've had 3 nights of deep sleep. It's amazing how much better I feel after actually sleeping at night (not that I don't get up and check on him occasionally).

Have a wonderful evening.

New chemo side effects

Well the side effects have kicked in since Jeff started this new chemo two weeks ago. He is unusually tired and diahhrea has set in. At least he's not experiencing the tingling in his fingers and toes - that's a good thing. He's taking a nasty tasting anti-diahhrea medicine and I'm letting him sleep most of the day and night. The facial nerve pain can be severe at times and unfortunately the new non-narcotic pain Rx does not work - so back to the tried and true Hydrocodone (5 mg).

One thing for sure - because he's sleeping so much I can accomplish quite a bit around the house. Yesterday I fertilized the hedges and bushes (poor things - I couldn't do it last year). The birds are happy - their feeders are replenished every few days and the bird bath is scrubbed out as well.

My mother's move to the new assisted living facility as been put on the back burner. They are awaiting their occupancy license which can take anywhere from 2 weeks to 45 days. Hopefully the doctors who are in partnership have some clout to push along the powers to be in having it completed in two weeks. In the meantime I continue to take boxes over there - unpack the items and take back the empty boxes for refilling. Their ribbon cutting ceremony takes place at 4:30 this afternoon with a tour and refreshments. She wants to attend - but depending on how Jeff is today I can't predict if I will be able to pick her up for the ceremony.

Tomorrow is speech therapy and a visit to the eye doctor and on Thursday is speech in the morning and his 3rd chemo in the afternoon.

Chaos isn't a theory - it's my life.

Have a wonderful Tuesday.

Plagued?

While relaxing on the lanai today Jeff came up with a new one. I know he meant to use a different word - but it broke my heart to hear him say it. He said "I just feel bad that you are plagued with me." My heart just ached to hear that. I know he meant he feels like a burden at times. I quickly told him he shouldn't feel that way and to remember the marriage vows - in sickness and in health. He would do the same for me if the tables were turned.

Last night was another successful evening - got plenty of sleep and no roaming took place. Today he even had a small bite of cheese and a piece of pork roast. So for now everything is humming along just fine n Poppy Court.

Have a great weekend everyone.

Cheryl

Great evening

Yesterday went off without a glitch. Jeff's speech therapist came in for her hour muscle stimulation and then off to chemo we went. His blood results were still good and he gained 3# since last week - up to 142.5#.

While he was receiving his treatment I took the opportunity to take my mother over to see her new apartment in the Sunflower Assisted Living Facility. She just loves it - which made me happy. I also was able to take over a few more boxes that she had packed up. Hopefully when it's time to move permanently - most of the loose items will be already there and put away.

Then whisked her back and off to pick up Jeff. Had a one on one talk with the Oncologist and he agreed with me to change Jeff's pain Rx. He put him on Tramadol (non-narcotic). All I can say is it must have worked - no roaming in the middle of the night and as I type this he is still sleeping comfortably. As a result - I had a great night's sleep.

Today is non-eventful - speech therapist at 10AM and the pressure washing of the driveway/walkway. Hopefully I can sneak in a haircut this afternoon.

Have a great Friday.

Cheryl

Coincidence

Good morning! Today is speech therapy/facial vital stimulator session and then off for chemo at 2:30 PM. Jeff had a good night from what I can tell - but was up around 4AM. It might mean he was "slept-out".

Yesterday I decided to call the fellow that does our pressure washing of the lanai screen cage. After looking at our driveway/walkway - I realized that needed to be done. We usually tackled that chore - but it would take me a few days without Jeff's help. Patrick called me yesterday afternoon to schedule the job and asked me how I was doing. He knew about Jeff last summer when he was here to do the lanai job. Long story short - he lost his wife last year to breast/brain cancer. He spent quite a bit of time on the phone talking to me and even told me to call him whenever I needed to talk or needed information. It's nice to know there are caring people out there who are willing to go above and beyond.

Another observation I have made is there are very few people that want to hang around you when they know you have a seriously ill spouse. I am blessed with two wonderful couples that live next door and down the street from me who are always willing to help. They call/e-mail often - even make extra food for me. (Not that I need that).... It means a lot to me that they care. In the past I've heard the same thing from friends that have had a seriously ill spouse and I always thought how can that be...... now I am experiencing that as well. Maybe they are worried it might be contagious.

I also have some wonderful close friends and family that live further away that keep in touch via e-mail and phone. They are never in a hurry when I'm venting and always have great advice.

Enough of my ramblings ..... It will be a good day once we get organized around here. Have a great Thursday everyone.

Wednesday's update

I decided to start this blog so my family and friends could follow Jeff's journey. This past year has been a struggle - not only for Jeff but for me. I keep praying, hoping and am trying not to worry - but at times it is difficult.

Tuesday was a difficult day for Jeff in the pain area. I have totally taken him off the codeine. After last week's hospitalization for the build-up of this medication - it was best to not give it to him. He is now taking 1/2 dose of Hydrocodone - 5mg twice a day. I did hear him moaning at 2:30AM - so gave him another dose. On Thursday I will ask the doctor about putting him on a different pain Rx because I think he has built up a tolerance for the one he's been on for almost a full year.

This morning he seems to be much better and is actually more active (coming outside for a puff on his cigar and enjoying the beautiful song birds that have arrived.

Thursday is his second chemo (third go around) and I can expect increased activity for at least two days because of the steroid they put in the I.V. He's much more talkative and active. I cherish those two days because by the third day he's back to being quiet, sleeping quite a bit and lethargic. He will have one more chemo next week and then one week off followed by three more chemos and then another dreadful PET scan to see where we are. Hopefully this different chemo will penetrate those cells and destroy them.

Your continued prayers are greatly appreciated.

Cheryl